Home again

We came home from the hospital yesterday evening and things have been going well.  Cayden doesn't seem to be in too much pain, at least not more than a dose of plain old Tylenol can't remedy.  He's sleeping, eating, peeing, pooping, and smiling, so I'd say all systems are functioning!

We stayed at the hospital a little longer than I originally wanted to so we could try to collect data for a room air challenge while they had him hooked up to a pulse-ox monitor.  He was taken off of his oxygen at 9:00 in the morning and stayed off until we left around 4 p.m. and he had no desats or issues whatsoever!  They gathered data while he was eating, napping in his crib, cuddling on momma, and sitting and snoozing in his car seat.  The only thing they didn't cover was a period of time at night while he was in a deep sleep in a crib.  So for now, we got the o.k. to take him off of his oxygen during the daytime while he's awake, which is awesome!  Our pediatrician is setting up a time next week to have a pulse-ox monitor delivered to our home so we can do the night time portion of the challenge.  If he passes that, we can get rid of the oxygen altogether.  Based on how well he did at the hospital, I'm sure he'll do great and I can't wait to kiss this big tank and stupid 50-foot cord goodbye!

Cayden will take it easy the rest of this week - no physical or occupational therapy appointments until next week.  We have a follow up appointment scheduled with the surgeon in two weeks, so she'll check him out and hopefully this bump in the road will be over with.